Life According to Sam

What is aging in Sam Berns, is aging in all of us. But in Sam’s body, the process is rapidly accelerated. When Sam was diagnosed with progeria at age two, his parents, Dr. Leslie Gordon and Dr. Scott Berns refused to accept that they would lose their son by age 13, the average age of death of a child with this disease. Eleven years later, Sam is 13 and his parents’ incredible race to save their son, has led to testing the first experimental drug that might prolong the lives of Sam and 28 other children from around the world that share this disease. Their discoveries may one day shed light on unlocking the aging process in us all.
Despite his physical appearance Sam, with his attachment to life , he has gone on beyond all expectations.

 

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BOSTON, MA - NOVEMBER 9: From the HBO documentary "Life According to Sam", Sam Berns and Zdeno Chara #33 of the Boston Bruins walk out to center ice for the ceremonial puck drop before the game against the Toronto Maple Leafs at the TD Garden on November 9, 2013 in Boston, Massachusetts. (Photo by Brian Babineau/NHLI via Getty Images)

Sam Berns, 15, who has the very rare premature-aging disease progeria, plays the drums in his high school's marching band.

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